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  1. Research guidance
  2. Research funding best practice
  3. Public involvement
  4. Get involved in charity research

Get involved in charity research

Public involvement is an active partnership in which patients and the public meaningfully contribute to and collaborate in all aspects, types, and stages of research. Involvement - where people work with research organisations and are actively involved in research - is different from simply taking part in a research study as a participant.

We use the term ‘the public’ to include patients, services users, carers and loved ones, donors of tissue, cells and data and other interested members of the public. Also included are people with lived experience of one or more health conditions, whether they are current patients or not.

Explore our public involvement guidance

Click on the charity profiles below to find links to the charities' webpages with information on how to get involved in their health research.

For the full list of our member charities please visit our member directory.

Alopecia UK

Alopecia UK

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Published: 9th December, 2019

Updated: 20th February, 2026

Author: Leonora Neale

Alzheimer’s Research UK

Alzheimer’s Research UK

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Published: 4th January, 2018

Updated: 19th November, 2025

Author: Anonymised User

Alzheimer’s Society

Alzheimer’s Society

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Published: 4th January, 2018

Updated: 2nd June, 2026

Author: Anonymised User

Anthony Nolan

Anthony Nolan

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Published: 4th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Arthritis UK

Arthritis UK

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Published: 4th January, 2018

Updated: 2nd June, 2026

Author: Anonymised User

Asthma + Lung UK

Asthma + Lung UK

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Published: 4th January, 2018

Updated: 4th March, 2026

Author: Anonymised User

Autistica

Autistica

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Published: 4th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Blood Cancer UK

Blood Cancer UK

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Published: 8th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Bone Cancer Research Trust

Bone Cancer Research Trust

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Published: 8th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Bowel Cancer UK

Bowel Cancer UK

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Published: 5th February, 2018

Updated: 21st May, 2025

Author: Anonymised User

Bowel Research UK

Bowel Research UK

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Published: 8th January, 2018

Updated: 14th April, 2026

Author: Anonymised User

Brain Tumour Research

Brain Tumour Research

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Published: 8th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Breakthrough T1D

Breakthrough T1D

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Published: 9th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Breast Cancer Now

Breast Cancer Now

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Published: 8th January, 2018

Updated: 27th March, 2026

Author: Anonymised User

British Heart Foundation

British Heart Foundation

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Published: 8th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Cancer Research UK

Cancer Research UK

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Published: 8th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Cerebra

Cerebra

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Published: 27th July, 2021

Updated: 21st May, 2025

Author: Leonora Neale

Coeliac UK

Coeliac UK

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Published: 13th September, 2018

Updated: 2nd June, 2026

Author: Anonymised User

Crohn’s & Colitis UK

Crohn’s & Colitis UK

Read more

Published: 9th January, 2018

Updated: 25th March, 2026

Author: Anonymised User

Cure Parkinson’s

Cure Parkinson’s

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Published: 11th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Cystic Fibrosis Trust

Cystic Fibrosis Trust

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Published: 9th January, 2018

Updated: 19th June, 2025

Author: Anonymised User

DEBRA

DEBRA

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Published: 9th January, 2018

Updated: 20th March, 2026

Author: Anonymised User

Diabetes UK

Diabetes UK

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Published: 9th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

Epilepsy Research Institute UK

Epilepsy Research Institute UK

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Published: 9th January, 2018

Updated: 13th March, 2026

Author: Anonymised User

Guts UK

Guts UK

Read more

Published: 9th January, 2018

Updated: 21st May, 2025

Author: Anonymised User

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