Interviewees

Charity 

Michele Acton, Chief Executive, Fight for Sight 

Kay Boycott, Chief Executive, Asthma UK 

Rebecca Cosgriff, Director Quality & Improvement, Cystic Fibrosis Trust 

Julie Dodd, Director of Digital Transformation and Communication, Parkinson’s UK 

David Ramsden, Chief Executive, Cystic Fibrosis Trust 

Jon Spiers, Chief Executive, Autistica 

Danil Mikhailov, Head of Data & Innovation, Wellcome Trust 

Ethics expert stakeholders 

Imogen Block, Data Ethics Team, Department for Digital, Culture, Media and Sport 

Jennifer Boon, Senior Policy Advisor, Centre for Data Ethics and Innovation 

Josh Cowls, Research Associate in Data Ethics, The Alan Turing Institute 

Tom Denwood, Executive Director Data, Insights and Statistics (AI), NHS Digital 

Anna Hill, Data Ethics Team, Department for Digital, Culture, Media and Sport 

Tom King, Secretary, Royal Statistical Society’s Data Ethics Special Interest Group 

Reema Patel, Programme Manager, Ada Lovelace Institute 

 

Workshop participants 

Charity

Hassan Abu-Bakir, Policy Manager, Fight for Sight 

Kay Boycott, Chief Executive, Asthma UK 

Rebecca Cosgriff, Director Quality & Improvement, Cystic Fibrosis Trust 

Said Dajani, Head of Digital, Diabetes UK 

Julie Dodd, Director of Digital Transformation and Communication, Parkinson’s UK 

Dawn Duhaney, Partnerships Manager, Wellcome Trust 

Lorcan Kenny, Discover Lead, Autistica 

Stephanie Parker, Deputy Director of Digital and Content, Stroke Association 

AMRC 

Lotte Coppieters, Digital Project Manager 

Carol Bewick, Head of Member Engagement and Communities 

Aisling Burnand, Chief Executive