Published 29 October 2018

This spotlight report highlights the key role medical research charities play in ensuring all children have the opportunity to live long, healthy lives.

Many children in the UK face health and medical challenges. This spotlight report sets out how AMRC member charities are investing in research to improve child health and provides examples of innovative projects and collaborations that are currently underway or have already made an impact on children.

Data sources:

Stats

  1. 30,000 children: http://www.geneticdisordersuk.org/aboutgeneticdisorders
  2. All other stats across the top of the front page are from the Royal College of Paediatrics and Child Health’s State of Child Health Report 2017.

Medical research charities invest in research:

  1. £97 million, 400 projects, 57 charities: Awards from current AMRC members active in 2016 and/or 2017. Inclusion criteria: award was either funded by a child health-focused charity or contained a relevant keyword in the title (child-, infant-, infancy, baby, babies, young people, kids).
  2. 45,000 participants, 195 studies: Clinical trials and studies in the Children specialty that were funded by AMRC member charities (1 Apr 2016 to 31 March 2018). Data from the NIHR CRN: Open Data Platform (ODP).
  3. Map: apportioned value of awards from subset described above (1). 3% had unknown locations.

To learn more about the projects featured in this report, follow these links:

  1. “Sleep on side” campaign to prevent stillbirth
  2. Newborn screening for cystic fibrosis
  3. The UK’s first adaptive clinical trial for children with brain tumours
  4. Pioneering new gene therapies for childhood conditions