AKU Society

Aku Society logo

This society provides patient support, community building and medical research for people living with Alkaptonuria.

www.akusociety.org

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Who we are

We equip our member charities with regular guidance and training, provide quality standards and carry out an audit every five years to ensure they’re supporting the best, most impactful research and researchers.
Vacancies
Changes to the way Excess Treatment Costs (ETCs) are paid
Principles of peer review
Become a member

Join us and become part of a network of over 140 medical and health medical research charities who deliver high-quality research that saves and improves lives
Leaving the EU

Negotiations continue to determine the UK’s new relationship with the EU. We are working to ensure that the voice of the medical research charity sector is heard as part of this process
Aisling Burnand

Chief Executive - Phone: +44 (0)20 7685 2623 - Email: [email protected]
Become a supporter

You don’t have to be a member charity to get involved with our work
Facilitating adoption of off-patent, repurposed medicines into NHS clinical practice
Consultation on revised AMRC IP guidance