Health and medical research charities fund a significant amount of research to bring benefit to patients. In order to do this well, research relies on the use of health information to better understand diseases and conditions. This understanding informs how new treatments can be developed and delivered more effectively.
Our members fund a variety of research, from the investigation of very common conditions to rare diseases. As the collective voice for health and medical research charities in the UK, AMRC believes it is vital to demonstrate the power of health information for research.
This booklet brings to life some of the ways in which health information is leading to advances in the prevention, diagnosis and treatment of diseases and conditions, as well as improvements to patient care. The five case studies showcased in this booklet alone have the potential to benefit nearly half a million people each year.
We hope this booklet will be a useful reference point and encourage charities, policy makers, researchers, the NHS, healthcare professionals, other funders, patients and the public to work together to identify a way forward which both encourages the responsible use of health information in research, and maintains security and trust.