Medical research charities are an integral part of the UK’s health research system. They respond to the priorities of people living in the UK and ensure that research into diseases and medical conditions is relevant, necessary and impactful. They fund research at all stages of the pathway from the lab to the clinic and support the people and infrastructure behind the research. In this way, they enable breakthroughs that would not otherwise have been possible.
Tracking and demonstrating impact is not easy or straightforward. Transformative breakthroughs involve many different players working collaboratively and in sequence, often in non-linear paths and involving dead-ends or unexpected turns. And most of all, impact takes time. For charities to map their contribution to these breakthroughs, they must routinely collect research outputs and outcomes – steps along the way to impact - from their researchers.
Some AMRC members use an online tool called Researchfish that allows them to collect the outputs and outcomes of their research funding from researchers over time. Collecting data in this consistent way allows us to pool data together from many different charities and perform a cross-sector analysis of the outcomes of the research funded by our members. In addition, because other major funders in the UK use the platform, it allows us to look at AMRC data in a wider context of public funding.
We are proud to share this new report that shows what research funded by AMRC members can achieve, highlights examples of excellence, and puts charities’ role into the context of the wider research system. It follows on from our 2017 and 2019 impact reports, incorporating three more years of Researchfish data and new stories of how charity-funded research has impacted patients and society. The report is structured around three important ways in which charities add immense value:
You can download a PDF version of this report and there is also an accompanying infographic.
If you have any questions, please contact us at [email protected].
We would like to thank the Medical Research Council, Interfolio UK, and all participating organisations for making this report possible.
This report was published on 15 November 2021.
In 2017, we published our first sector impact report to help define areas of medical research impact and show that despite significant challenges to tracking impact, charities of any size can demonstrate how the research they fund makes a difference to people and society.
Since then, we’ve seen more and more of our charities publish reports that share the impact of their research with the public.
This year, we were pleased to once again, explore the variety of ways charities make a difference. Here we reflect on the key take-aways.
By engaging with the public, charities are helping to increase the accountability and transparency of research, respond to health needs locally, nationally, and globally, and build trust and mutual understanding with the public. Engagement activities are the second most common output of AMRC charity-funded research in this report.
AMRC member funding contributes to a quarter of new collaborations and partnerships in the UK that have been reported in Researchfish by public funders. They help to convene and attract the necessary funders to move promising research forward and deliver benefits to patients sooner.
In addition, AMRC member funding contributes to a quarter of medical products, interventions and clinical trials reported in Researchfish by public funders. Charity research is shaped by patients’ priorities, ensuring funding is directed where it will make the most difference to patients and lead to more efficient products and interventions that help prevent, diagnose, treat, cure, and improve quality of life for people.
Despite being hit hard by the pandemic, medical research charities stepped up, working tirelessly to support the national research effort. They provided a skilled workforce, infrastructure and support for testing and vaccine development, and pivoted to fund new COVID-19 research. Their contributions supported the successful creation and roll out of a new vaccine, which is saving thousands of lives.
Never has the importance of medical research been so apparent, but more work is needed to ensure the public, government and other stakeholders understand the vital role charities play in saving and improving lives through research and innovation.
We will continue to help champion the impact of the sector in the coming year.