James Lind Alliance

What is it?
The James Lind Alliance aims to identify the most important gaps in knowledge about the effects of treatments, by bringing together patients and clinicians in priority setting partnerships.

How can it help?
The JLA priority setting partnerships identify and prioritise unanswered questions that both parties agree are most important. This information can inform those who fund health research of what matters to patients and clinicians. Partnerships cover a variety of areas including asthma, urinary incontinence, vitiligo, prostate cancer and diabetes.

Website: The James Lind Alliance

INVOLVE

What is it?
Involve is a national advisory group that supports and promotes active public involvement in NHS, public health and social care research.

How can it help?
Involve has a wide range of publications that can help organisations that wish to include patients and the publics’ view in their research funding process, as well as information on training, and a database of publications about the use of PPI in the research process.

Website: INVOLVE

People in Research

What is it?
A website that helps members of the public make contact with organisations that want to actively involve them in clinical research.

How can it help?
By adding your organisation to the website directly, you can advertise your activities and recruit potential help.

Website: People in Research

invoNET

What is it?
invoNET is a network of people working to build evidence, knowledge and learning about public involvement in NHS, public health and social care research.

How can it help?
invoNET houses a library of publications in the peer-reviewed and grey literature that features PPI.

Website: invoNET

National Centre for Involvement

What is it?
The National Centre for Involvement (NCI) supports and encourages the NHS and other organisations to involve patients and the public in health and social care decision-making.

How can it help?
Although focused primarily on encouraging PPI in the NHS, this website contains a lot of information on how to involve patients and the public in different scenarios.

Website: National Centre for Involvement

October 2009