Charities may find it helpful to explore the following discussion points with colleagues from across their organisation. We would recommend that this discussion be led by the research director or equivalent within the charity in the first instance. What are the opportunities and challenges of involvement in research?
Looking at the case studies and learning points in this report, what do you see as being the main challenges and opportunities for you as an organisation in taking forward PPI? What does this ‘scorecard’ look like to you and your colleagues?
How do you currently involve patients and the public?
What has been your charity’s approach to involving patients and the public in research up to now? And if not in research, what about in the other activities of your organisation? Are there models and experience which might help inform how you would take PPI forward in research? Are beneficiaries and supporters of your charity interested in becoming more involved?
Where could involvement have the greatest impact?
This report looks at PPI at different points in the research cycle – from developing a research strategy to providing information and in respect of different types of research. Where could PPI make the greatest difference to what your charity does in respect of these activities?
What do your other stakeholders think?
How do your other internal and external stakeholders view the issue of public and patient involvement in research? If you were to begin tackling PPI, where would the leadership for it come from within your organisation?
What are the resource implications for you?
What would it require for you and other colleagues to support public and patient involvement in research, including ongoing training and support needs?
What are you going to do next?
Is it worth proposing that your charity’s approach to PPI be considered at the next trustee meeting or away day or your AGM – somewhere where your organisation can begin to distil the agenda into something meaningful for the research you fund and the patients you serve?
22 October 2009