Personal health information (also known as patient data) is a hugely valuable resource for medical research; it is vital in developing understanding of disease and discovering new cures and treatments for patients.
In the near future, we expect the Government to implement a national opt-out for health and social care data. The voice of medical research charities will be an important advocate to enhance understanding and support for the sharing of personal health information for research.
This workshop will provide an opportunity to hear more about the current climate surrounding data sharing. It will also provide the opportunity to facilitate a wider conversation about how members can effectively champion and communicate the responsible use of patient data in their research, including what simple steps the sector could take to create a more positive environment on data.